Prune belly syndrome… it effects one in every thirty to forty thousand babies. I remember when we went to the doctor and they diagnosed our unborn son with it. It was one of the worst days of my life. We went to the doctor hoping to find out what gender our baby was but instead we were given news that he might not even survive, and if he did his life would be full of surgeries and constant doctor visits. From there it only got worse. A few weeks later they gave us the fatal diagnosis and told us there was a good chance he wouldn’t even make it full term, and if he did he would only live for minutes. Prune belly causes the abdomen muscles to not fully develop and the baby is unable urinate properly. The urine backs up to the kidneys and causes kidney failure along with the amniotic fluid to be extremely low and ultimately causes the lungs to not develop properly. Its seemingly is just a combination of problems and since it is a pretty severe case, there is nothing the doctors can do to help my little one out. I am completely heartbroken. I feel so helpless. On the outside I’m numb and emotionless but on the inside I’m crying and screaming and falling apart. My first pregnancy wasn’t supposed to be like this- I was supposed to be planning baby showers and spending all my money on little clothes, diapers and toys for my unborn child. It’s completely unfair. I spend every day cherishing every little movement I feel, not knowing if it will be your last. I pray everyday that you will make it full term so me and your father can meet you. See your beautiful eyes, hear your little heartbeat.. even if it’s just for a few minutes. I’m trying to be happy, and strong. But for now I take it day by day.
Sunday, March 9, 2014
the diagnosis - prune belly syndrome.
May 4, 2013
To my sweet unborn son- How can you love someone so much you’ve never even met? And the thought of knowing there is a good chance they’ll be taken away before you get to even meet them is almost unbearable. I don’t know if I’m going to be able to see you grow, to take your first steps, say your first words. It is the unknown that is the hardest. Sweet baby Ky, you are sooo loved already. I cherish every move I feel. I can’t believe how strong you are, you are such a fighter. Everyday you fight for your life and it kills me to know your little body is already going through so much. I feel so helpless.
Prune belly syndrome… it effects one in every thirty to forty thousand babies. I remember when we went to the doctor and they diagnosed our unborn son with it. It was one of the worst days of my life. We went to the doctor hoping to find out what gender our baby was but instead we were given news that he might not even survive, and if he did his life would be full of surgeries and constant doctor visits. From there it only got worse. A few weeks later they gave us the fatal diagnosis and told us there was a good chance he wouldn’t even make it full term, and if he did he would only live for minutes. Prune belly causes the abdomen muscles to not fully develop and the baby is unable urinate properly. The urine backs up to the kidneys and causes kidney failure along with the amniotic fluid to be extremely low and ultimately causes the lungs to not develop properly. Its seemingly is just a combination of problems and since it is a pretty severe case, there is nothing the doctors can do to help my little one out. I am completely heartbroken. I feel so helpless. On the outside I’m numb and emotionless but on the inside I’m crying and screaming and falling apart. My first pregnancy wasn’t supposed to be like this- I was supposed to be planning baby showers and spending all my money on little clothes, diapers and toys for my unborn child. It’s completely unfair. I spend every day cherishing every little movement I feel, not knowing if it will be your last. I pray everyday that you will make it full term so me and your father can meet you. See your beautiful eyes, hear your little heartbeat.. even if it’s just for a few minutes. I’m trying to be happy, and strong. But for now I take it day by day.
Prune belly syndrome… it effects one in every thirty to forty thousand babies. I remember when we went to the doctor and they diagnosed our unborn son with it. It was one of the worst days of my life. We went to the doctor hoping to find out what gender our baby was but instead we were given news that he might not even survive, and if he did his life would be full of surgeries and constant doctor visits. From there it only got worse. A few weeks later they gave us the fatal diagnosis and told us there was a good chance he wouldn’t even make it full term, and if he did he would only live for minutes. Prune belly causes the abdomen muscles to not fully develop and the baby is unable urinate properly. The urine backs up to the kidneys and causes kidney failure along with the amniotic fluid to be extremely low and ultimately causes the lungs to not develop properly. Its seemingly is just a combination of problems and since it is a pretty severe case, there is nothing the doctors can do to help my little one out. I am completely heartbroken. I feel so helpless. On the outside I’m numb and emotionless but on the inside I’m crying and screaming and falling apart. My first pregnancy wasn’t supposed to be like this- I was supposed to be planning baby showers and spending all my money on little clothes, diapers and toys for my unborn child. It’s completely unfair. I spend every day cherishing every little movement I feel, not knowing if it will be your last. I pray everyday that you will make it full term so me and your father can meet you. See your beautiful eyes, hear your little heartbeat.. even if it’s just for a few minutes. I’m trying to be happy, and strong. But for now I take it day by day.
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